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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 1 2008 22:45:52
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Gothic_Muscle
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quote:
ORIGINAL: big_nige
hey guys my sister has crohns and dad colitis both bad cases is there any kind of diet which could help improve there conditions?
Some people stay away from certain things like Alcohol or high fibre or milk as they found this to work for them etc but my consultant has always told me that there is no conculsive proof that links flare ups to dietary restrictions and has advised me to live my life and treat each flare up as and when it happens, and I would be inclined to agree, I've not made any dietary changes and I've got no problems. When a flare up happens I'm on the pred steroids to control the inflammation, it goes and I get on with life. Of course, there are some on here that swear by following a special diet or making some restrictions but I've not made any.
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RE: Some questions for fellow colitis sufferers (includ... - Jan. 2 2008 15:25:07
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James
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From: healthyaction.co.uk
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quote:
ORIGINAL: Bea
Nutritionalist !!
No, the correct term is 'nutritionist'
There's no 'al'
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RE: Some questions for fellow colitis sufferers (includ... - Jan. 2 2008 15:36:25
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Bea
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Thanks James!
I agree with Gothic...I don't think the flare ups or the colitis in general has anything at all to do with food...although I must say that since I cut out meat and chicken from my diet I don't get awful stomach pains and bloatedness...
I usually eat a very healthy and varied diet and I try to avoid all processed foods...However , when having a flare up...the last thing I want is fruit...veg...salads...healthy stuff etc..etc...all I seem to want is quick acting sugar foods which is the worst thing!! but because of the lack of appetite and the anaemia I find that's what the body is telling me I need...
Has anyone heard of Seacure? Seavive? or VSL3?
I have heard it is good for colitis sufferers///has anyone tried it?
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RE: Some questions for fellow colitis sufferers (includ... - Jan. 2 2008 17:54:40
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b0x
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I think the thought of what you put in your mouth having nothing to do with how your body reacts to the part of you which processes what you put in your mouth is a bit silly.
Personally I follow a diet called specific carbohydrate diet, though it's very close to a paelo / caveman diet which is also meant to be good for colitis sufferers. I never preach but i will say (as you asked) I believe the diet helps and i feel healthier on it. FWIW i was flaring every 3-6 months off the diet. Sitting here now, my last flare was 15months ago.
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RE: Some questions for fellow colitis sufferers (includ... - Jan. 2 2008 23:38:50
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Bea
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What's this carbohydrate diet bOx?
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RE: Some questions for fellow colitis sufferers (includ... - Jan. 3 2008 9:02:51
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b0x
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http://www.breakingtheviciouscycle.info/
Some of the followers are a bit cookoo, I'd recommend reading the book and reviews on amazon and forming your own opinions.
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 4 2008 18:05:41
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Gothic_Muscle
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Has anyone heard of possible benefits to IBD by supplementing with Aloe Vera products? Just curious as H&B have a sale on the juice!!
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 4 2008 19:37:56
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b0x
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Goes one of two ways depending on who you talk to.
Camp A believe it soothes the colon and is beneficial.
Of course camp B don't agree. An active ingredient in aloe is an anthroquinone which is known as a powerful cathartic (irritant to the colon)
As usual I'm just reporting the facts. My own personal experience with aloe (used it for about a year) was it made no different either way. If I had to pick a side it would be B.
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 4 2008 21:00:42
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Gothic_Muscle
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quote:
ORIGINAL: b0x
Goes one of two ways depending on who you talk to.
Camp A believe it soothes the colon and is beneficial.
Of course camp B don't agree. An active ingredient in aloe is an anthroquinone which is known as a powerful cathartic (irritant to the colon)
As usual I'm just reporting the facts. My own personal experience with aloe (used it for about a year) was it made no different either way. If I had to pick a side it would be B.
Thanks for the info mate. I'll prob give it a go purely because it's dirt cheap in H&B at the mo but end of the day, there's only somuch you can take and do to satve off another flareup. Cheers dude 
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 15 2008 12:11:16
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groovemeister
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OK, got me a colonoscopy in 5 days time.
Now, the leaflet that came through says:
5 days before, stop taking supps (which means I'll be sh1tting all day due to coming off the loperamide) - that's today
2 days before, low fibre and increase fluid intake (fair enough, but how low is low fibre?)
1 day before, clear fluids only - no solid food intake or drinks containing milk, also take laxative that arrived with leaflet.
Does anyone know if dropping the loperamide supps is necessary and the food thing? My appointment is at 14.30 he next day so I'd have thought no solids on that day would be what's needed - I don't remember any of this last time I had one - or was that an endoscopy - is there a difference?! Plus how the fvck am I meant to get any protein in?
< Message edited by groovemeister -- Jan. 15 2008 12:12:53 >
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 15 2008 12:17:28
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b0x
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I personally stopped eating 2 days before the prep, then only took half the prep and it was quite a good experience. Most hate it.
A friend wrote this up a while ago, you might find it useful (sorry for length):
HOW TO PREP AND GET THROUGH A SCOPE THE EASY WAY...
First, it really isn't as bad as some people say it is. I'll tell you a funny story - or at least I think it's funny. About a year after the scope that diagnosed me, I was sitting in one of my GI's exam rooms, waiting for him to finish with a patient next door so he could do my check-up. It was a young-ish girl - I'd seen her go into the room and she was having a scope... she looked like she was in her early twenties. So I'm sitting next door, and I hear her start to sort of wail, for lack of a better term. She's crying, and yelling "Oh God!", and "No!", and "It hurts!", and "stop it... I can't!"... and all the time she's crying, and I can hear my GI, who is very patient and gentle and understanding, telling her to relax and calm down. And as this goes on for about twenty or so minutes, I can hear him slowly losing patience and telling her that if she doesn't calm down and relax, he can't continue. Finally, I hear him say, "okay, that's it. I give up" and he comes into the exam room I'm sitting in and plonks himself down in his chair, breathing a heavy sigh. So I asked him if she was okay, and said she must be in really rough shape for it to be so painful and upsetting, and he says, "I can't tell you - I couldn't get within a foot of her with the scope before she started to yell and cry that it hurt." He hadn't actually even been able to do the scope at all, because she was so wound up and freaked out that the minute she sensed he was doing anything behind her (where he, must needs, be), she'd begin yelling that it hurt, even though he hadn't even started.
So... the moral of that little anecdote is, don't be freaked out. When I had my first scope, the one during which I was diagnosed, and saw the shape my gut was in, on the monitor (it looked almost completely black, it was so ulcerated, with very thin lacings of pink, where there was any unaffected tissue showing)... that scope was, at worst, a bit uncomfortable. My last scope just kinda made me feel like I was beginning to need to go to the bathroom, which makes sense, cause there was a camera rammed all the way up into my ileum! Heheheh. And when he did the biopsies, I could see it on the monitor, and it felt a little like something was tickling inside my belly. So, the best advice I can give you about the actual scope is to relax, take deep breaths, and just do whatever they tell you - you can't do much else, because you'll just be lying there on your side.
The worst part of a scope is the prep, and by worst, it just means spending four hours in the bathroom You can make it easier by not eating anything with seeds in the 5 - 7 days before the scope because they can lodge in the folds of the intestine and 'hide' there. So - no sesame or poppy seeds, and no strawberries, kiwis, raspberries, tomatoes, or anything else with seeds. 3 days before, stop eating anything with fibre, whether it's lettuce or green beans or whatever. Also, try and stick to chicken, fish, turkey, etc., because red meat can take longer to digest. You want to make whatever is inside you as easy to get rid of to clean out as best as possible. The day before the scope, eat a light breakfast of eggs or something like that. Stop eating solids at noon, and from then on, stick to clear liquids - broth, black tea or coffee (you can use honey in it), home-made jello (but use white grape juice if you make it - you shouldn't have anything red, orange, or heavily dyed because it can colour your gut and make it harder for them to know what's going on... purple grape juice can have the appearance of occult blood in the gut, and any dark dyes can hide things they need to see)... At about 4:30 or 5:00 in the afternoon, you're going to start the prep, and from that point on, stick to water (sometimes they say to mix the prep with sweet drinks, but that can actually impair the way the flush works because it's a hyperosmotic - it works by causing an imbalance in the salts in your gut and pulling water into it to flush it out and rebalance it). I don't know what you'll be using for a flush. My flush of choice is two 1.5 ounce bottles of Fleet phospho-soda. (NOTE - 1 LIQUID OUNCE IS EQUAL TO APPROXIMATELY 28.5 ml.... ) You mix one with water, drinking 24 ounces of water total. After 20 - 30 minutes, you do the same with the second bottle (they say to do it after 10 minutes, but it's hard to drink 48 ounces of liquid in 20 minutes), and by about 30 or 40 minutes you should be starting to go. At that point, keep drinking water - I generally get between 3 and 4 litres of water into me by the time I'm finished... You feel like you're going to float away, but it goes away as you start to go..... and you'll go... and go and go and go... So, I drink about 4 ounces (125 ml give or take) or water at a time after I've finished taking the phospho-soda, but drink it about every ten minutes. You're want to go till all that's coming out is clear yellowish water. The instructions for flushing with phospho-soda are at:
http://www.phosphosoda.com/Cons/phosphosoda.htm
Now... and here's one of the most important things... You'll want a couple rolls of the softest toilet paper you can find AND, you'll want a box of baby wipes... some people balk when I say that, but believe me, as a 'veteran', you're bum will love you for it, and you will be a much more happy camper for having used the baby wipes than using just toilet paper. I can't stress what a difference it will make... Aside from that, you should probably make sure you have a good book nearby, because you're going to be in there for a while. Now, when I "flush" for a scope, the biggest risk I face is that my legs will fall asleep from sitting on the toilet seat for so long (you won't be sitting the entire time, but there may be 'episodes' where you're there for a while).
When you've reached the point where all you're passing is yellow water, keep drinking more water - as much as you can stand to drink comfortably. It will help keep your hydration to stay more normal and help you bounce back to your old self afterwards - and the better you've cleaned out, the easier and faster the scope is. Also, don't be a hero - I hear stories from people in the US that they are put under completely for their scope, but my doctor doesn't do that and I think it's dangerous when you've put your system out of whack like that... But my doctor does administer an IV with demerol and versed. I suspect that some people who say they are put under are just receiving that and it knocks them out because they don't have much of a tolerance for sedatives... I have a very high tolerance for them, so while most people will tell you that the versed made them remember little of the procedure, I'm wide awake the whole time and watching the monitor, but very relaxed from the meds... So, if you have a choice, take the meds... I'll say it again... take the meds, take the meds, take the meds - that they relax you goes a long way to making the procedure more comfortable and because you're relaxed, the doctor can do it faster and he can see more, and so the whole procedure will be that much more successful. My last scope took about 4 minutes, and like I said, he got all the way up into my ileum. If you're awake, just lie there and take deep breaths and focus on staying relaxed and it should go by very quickly and easily.
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 15 2008 14:10:34
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groovemeister
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Thanks for the advice mate. :)
So no eating 24 hrs before, basically? Any idea what I can digest to keep me from going bonkers? Minestrone soup maybe? Any way to keep the protein going in or am I shafted?
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 15 2008 14:16:47
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b0x
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I wouldn't worry about losing protein for 24 hours, the odd starve is good for the body.
Trust me, once you start the prep eating will become a whole lot less appealing!
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 15 2008 16:58:34
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groovemeister
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OK then - I tend to get very weak when I don't eat for a few hours.
Can you think of anything I can drink other than glucose drinks which will give energy and then stop, i.e. something hat lasts a bit?
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 15 2008 17:03:50
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b0x
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Weak? I get hungry but if needed can go for about 36 hours and not notice any loss in energy providing I can keep my mind active.
A warm honey and lemon drink would be my only suggestion.
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 16 2008 23:04:09
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groovemeister
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OK, thanks for all advice matey.
I will have to look for something to keep my tummy full. Maybe just dilute some juice.
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 17 2008 12:00:36
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groovemeister
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OK, as a safe measure I want to have things to drink in case I feel weak.
Apple juice is a clear liquid and so OK. Other things are:
olive oil. Long lasting energy source which will hopefully make me feel a bit nauseous and so not want to eat any more and
liquid egg whites - protein! What do you think to that mate?
I can't see a problem with whites, what do you think of yolks too?
< Message edited by groovemeister -- Jan. 17 2008 12:01:47 >
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 17 2008 20:46:09
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ANARCHY2612
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Your not supposed to eat anything, thats the whole point of starving and having that dreadfull laxative drink, to clear your colon for the camera to go in and get a good view of things.
People might want to increase theit intake of Omega fatty acids, just read the following on the AST web site
Cardiovascular disease, obesity, diabetes, osteoporosis, and cancers are termed “inflammatory diseases” as they manifest from a chronic inflammatory response produced within the body. 8 From the research it is clear that the large imbalance between the omega-6 to omega-3 fats in our diet creates this chronic inflammation that underlines so many unrelated conditions of ill health.8,9
This imbalance between the omega-6 to omega-3 PUFA in the modern diet has also been linked to the ever-increasing incidence of depression among adults10 as well as the sharp decline in mental capacity of our older population.11 The brain requires an extraordinarily high amount of omega-3; an equal ratio (1:1) of omega-6 to omega-3. For other tissues it’s only 4:1. It’s also interesting to note that patients with autoimmune diseases, such as rheumatoid arthritis, inflammatory bowel disease and asthma all show alleviated symptoms when more EPA and DHA are included in the diet.9
Link to full article is http://www.ast-ss.com/articles/article.asp?AID=282
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RE: The Official MT Colitis & Crohns Sufferer's Thread - Jan. 18 2008 12:19:30
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groovemeister
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quote:
ORIGINAL: richyd
I take it this is the full one??? They are looking right the way round???
I must be honest i absolutely detest these ive had 4 or 5 to date. Never a full one but a 3 quarter. For me its one of the worst procedures ever. Had my last one about 2 weeks ago. There was loads of like wart thing (there is special name for them) they are where the colon has healed  I take it uve had this an seen them box?? When i had it don on my flare up there was patches of red every where where it was ulcerated an bleeding. Worst part for me is wen they inject the air. You feel like your gon **** yourself but its just the air. Rather you than me mate but the way i look at it it is a MUST!!!! if you want to get better. GOOD LUCK!!
I'm not so sure TBH mate.
I've been of the loperamide for 3 days as the instructions say. Since seeing my specialist I asked about increasing Asacol as b0x said that he felt improvement. Well, I've gone up and my stools are significantly firmer. I still only poo in the mornings. Yesterday I had to go 3 times but that was it with no loperamide or iron tablets or anything so it's incredibly mild.
I have to have the colonoscopy to be sure but I think that I have a very mild condition that might just be the 20cm stretch of quiescent colitis and the cause of my fatigue is something else entirely. And after the op I will be going to the doctors the next day to see them about what could be causing the tiredness if the op shows nothing major at all as I suspect. Haven't worked out in months and couldn't go to uni 'cos of it. I couldn't even handle a part time college course to occupy me!
I'm being sedated for the op so I shouldn't be too bad. Unlike last time, the Mrs is gonna drive me home and stay at the hosp which it's done (quite a drive) so no point going back in between - I'm just worried about sh1tting myself on the way over 'cos of all the laxative that I take. Also, the feeling of complete weakness and not being able to focus 24hrs beforehand. I get hungry so easily. I'll be having a fat laden meal shortly before the deadline to stop eating. And I'm going to keep some serious food in the car for afterwards. I don't care how bloated I feel, I'm going to have something!
quote:
ORIGINAL: ANARCHY2612
Your not supposed to eat anything, thats the whole point of starving and having that dreadfull laxative drink, to clear your colon for the camera to go in and get a good view of things. Yeah but you're allowed clear fluids, hence my questions.
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