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RE: Some questions for fellow colitis sufferers (includ... - Aug. 27 2007 19:14:49
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b0x
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Isn't for me either James
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 27 2007 19:16:35
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youngitalianbabe
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Which one is predfoam? How is that different to Asacol?
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 27 2007 19:25:37
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Gothic_Muscle
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quote:
ORIGINAL: youngitalianbabe
Which one is predfoam? How is that different to Asacol?
Preadfoam is the rectal foam version of prednisolone, a corticosteroid. Asacol (available in many forms) contains mesalazine (otherwise known as 5-asa) which is a bowel specific anti-inflammatory drug.
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 27 2007 19:30:06
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Gothic_Muscle
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quote:
ORIGINAL: James
I notice many of you mention the tiredness.
Wasn't really a problem for me
For me this depends on how much blood I pass with each potty visit. It's not generally a problem for me but there was this one time that I had 4 trips to the loo in 30 mins where I lost a fair amount of blood and crashed on the floor in my ex's house, she totally freaked when that happened. Bless her, she had to put up with a lot because of this b****ard disease!
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 27 2007 20:15:39
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RedHotF
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Can I just jump in here and pose a question please?
My dad has had ulcerative colitis for about 18 months now. He went to the Dr with his symptoms and the Dr asked him how his health and wellbeing was in general, aside from the symptoms. Dad said he felt great as had just given up smoking (he's smoked for about 40+ years).
The Dr said ahh well this is most likely what has brought the colitis on. Apparently the nicotine suppresses the disease and the Dr told Dad, off the record, that the use of nicotine patches is being investigated as a possible remedy/treatment for colitis.
Is there any truth in this, does anybody know more? (James? Big Les?)
All Dad knows is that he had no problems or symptoms with his bowels when he was smoking, as soon as he stopped - he's never been so ill in his life!!
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 27 2007 20:30:36
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b0x
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Quite common for colitis (UC, not crohns strangely) to appear once you stop smoking. Some people find nicotine patches help but aren't as effective as smoking again.
Pick your poison as they say.
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 28 2007 10:04:15
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Gothic_Muscle
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quote:
ORIGINAL: richyd
RHF yes from what ive read on the net there is a lot of research into using nicotine patches to stop uc. And i think there has been studys on smoker and they have found that they dont suffer with it. Im even tempted to start smoking 
Gothic how many times have you been on pred?? And for how long mate?? The specialist seems to think that ive been on it so long its not working.
I hope none of you ever get to cycloprine its a nasty drug some serious sides 
What's happening Richyd! I've been on pred 5-6 times in the 20 months I've been diagnosed with crohn's. 4 of those times I've managed to catch the flare up at the right time and it only took a few weeks to control it and stop taking the meds. 2 of them I was on it for about 2-3 months or so but these were nasty 'stay in hospital' flare ups, took ages to take to the meds. I last took them in May for a flare up and was off them in 3 weeks so all in all I've been off them almost 3 months which is one of the longest periods for me........although......I'm starting to get some very uncomfortable cramps at the moment 
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 29 2007 10:57:58
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Gothic_Muscle
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My turn to post a question 
I find an elemental or semi elemental diet to work well when I've got a flare up therefore it would stand to reason that if this kind of diet works well when ill then it should work just as well when not ill to reduce the burden on the gut and digestive tract but most poeple who post up diets often get shot down as they include too many shakes etc. With this condition are we excused from the 'too many shakes in the diet' scenario or should we still focus on whole foods when not ill?
My protein shake does consist of when isolate, micellar casein and egg white powder and I've gone to using it for 4 of my 6 meals and I feel great on it, no problems, it's easier less prep work etc and a shake goes down a lot easier and quicker when in work and eating becomes a problem. Is this sustainable for long term health or should I drop a shake and stick in another whole food choice so I've got a 3:3 ration of shakes/food?
Cheers
Emz
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 29 2007 18:57:32
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James
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quote:
ORIGINAL: Gothic_Muscle
My turn to post a question
I find an elemental or semi elemental diet to work well when I've got a flare up therefore it would stand to reason that if this kind of diet works well when ill then it should work just as well when not ill to reduce the burden on the gut and digestive tract but most poeple who post up diets often get shot down as they include too many shakes etc. With this condition are we excused from the 'too many shakes in the diet' scenario or should we still focus on whole foods when not ill?
Well an elemental diet is the clinical treatment in severe cases and would work in 99% of severe cases. Semi-elemental, whilst maximising abosorption of macronutrients do still require work by the gut
For others' info:
Elemental diets are where we ingest solely monomer units of nutrients, ie amino acids, monosaccharides and fatty acids - with all vits and mins in their simplest form too.
Semi-elemental diets are part digested, so you have amino acids and short chain proteins, mono-, di- and oligosaccharides and triglycerides. Whey is an example of a protein which is naturally part digested, ie the peptide chains are quite short, which is why it's quickly digested and absorbed.
A good question though - but during remission we shouldn't need to rest our bowel as it's normal (though this is a debate by experts). But during relapse I did stick myself on alot of whey due to it's semielemental state
quote:
My protein shake does consist of when isolate, micellar casein and egg white powder and I've gone to using it for 4 of my 6 meals and I feel great on it, no problems, it's easier less prep work etc and a shake goes down a lot easier and quicker when in work and eating becomes a problem. Is this sustainable for long term health or should I drop a shake and stick in another whole food choice so I've got a 3:3 ration of shakes/food?
Casein and egg white are not semi-elemental though, so although you're having a shake diet, it's still normal polypeptides. On semi-elemental carbs need to be simple.
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 29 2007 19:33:46
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Gothic_Muscle
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Cheers James, that's cleared up a few misconceptions!
Emz
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 29 2007 23:18:04
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James
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quote:
ORIGINAL: richyd
As you know im pretty bad im trying this diet. I had a diet sheet off the hospital dietician but would appreciate some more info i you can james please.
It says avoid vegtables excecpt peeled or boiled
Have everything white avoid brown and wholemeal
Avoid spicy foods, fried foods and toasted cheese??? 
Drink plenty of fluid
Try nourishing drinks
Any thing else james????
THANKS
That looks like a very basic variation on a low residue diet. However the low residue diet I advocate is far different to this
In basic it needs to be low fibre. This means avoid all major sources of fibre, in short: peel all fruit (but do not exclude fruit), peel all veg, avoid leafy green veg, avoid brown/wholemeal/wholewheat foods, etc
Do include plenty of fluid, high protein, high simple carbs are useful - sugar is great. Do have a multi-vit multi min. Whey isolate may also be useful (semi-elemental) in water.
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 29 2007 23:37:27
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ANARCHY2612
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I had Crohns for about 2 years the only thing I found to help with the sh**s was potatos & porridge as they sweemed to help solidify things a little, flare ups could last a month 6 weeks with incredible back pain which seemed to eminate through your whole body, totally debilitating you, that coupled with anaemia from the blood loss, persistant spewing and crapping and total lack of appetite due to stomach cramps made you feel pretty crappy. Terrible sweats at night, soaking the sheets. I remember at my worst I hadnt eaten anything for 2 weeks all I could do was force a pint of milk a day down me just to get some sort of nutrition, even the smell of food made me spew after that I ended up in hospital for a month.
The medication in itself is pretty awfull, Prednisolone, asacol (i'm allergic to that) I lost ½ stone in a day after that stuff, Hydrocortisone (IV prednisolone they give in hospital)I also ended up on azathioprine and Cyclosporin both very unhelalthy,azathioprine actually has a Biohazard sign on the box!! and Cyclosporin stinks and you can smell it coming out of your skin after a few days,the latter are given to transplant patients to stop them rejecting the new organ. They kill the immune system, in the end you start to think "Hang on a minute I already got a fu**ed up colon now the medication is going to f**k up the rest of me aswell" after a year on this stuff I had to come off it because my kidneys were packing in, in the end it was a relief to get my colon removed, wish they had done that in the first place instead of putting all that poison in my system.. they saved 8" of my large bowel which was reconnected after 4 years with a bag. They say stress can bring on a flareup and at the first sign of a flare up I was told to spend a week in bed by the doc. Nothing seemed to help with me but my mate has Crohns and a week on Prednisolone and Asacol and he's right as rain, I suppose everyones different really.
Hope things clear up for you soon buddy
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 29 2007 23:50:16
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bopo
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Ok, I had to Google this as I had to idea what is was, anyways how come so many of you have it? is it related to something ?
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 29 2007 23:58:16
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ANARCHY2612
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Cyclosporine and azathioprine worked for about a year but they started to damage my kidneys so I had to come off them, as soon as I came off them I was 10 times worse than I had ever been before and ended up straight in hospital. The drugs are bad news and your better of without em, better off with half a colon and healthy organs than a full colon that doesnt work properly and f***ed up kidneys etc... dont you think?
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 30 2007 0:01:22
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ANARCHY2612
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I dont know why I was on it so long, I think the Consultant was experimenting lol this was in 1997 so was a few years ago I was also on 10 prednisolone a day also, bad news! now I am medication free
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 30 2007 0:02:55
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ANARCHY2612
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I notice your from Wales, me too. You under University hospital?
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RE: Some questions for fellow colitis sufferers (includ... - Aug. 30 2007 0:03:08
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richyd
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NO MATE!!!
I dont want or even couldnt live with a bag. It would absolutely DESTROY MY LIFE!!!!! Im not very confident now and to have a bag would cripple me. I dont think i would leave my house so technically my life would be over any way.
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