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Helpful ReplyHot!Anyone here with any life changing health conditions?

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sl
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2018/05/10 01:29:07 (permalink)
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Anyone here with any life changing health conditions?

If so, when was you diagnosed? And how do you cope with it ?
#1
Rasputin
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Re: Anyone here with any life changing health conditions? 2018/05/10 09:21:29 (permalink)
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Ginger, about 3 weeks and badly !!! 

Ra Ra Rasputin lover of the Russian Queen, Ra Ra Ra Rasputin Russia's greatest love machine (Allegedly)
#2
BigWig
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Re: Anyone here with any life changing health conditions? 2018/05/10 18:15:50 (permalink)
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Yes, my penis is tiny.
#3
VikingPump
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Re: Anyone here with any life changing health conditions? 2018/05/10 23:56:49 (permalink)☄ Helpfulby BROKEN 2018/05/15 12:37:37
+1 (1)
Assume you're being serious so will answer lol.

Diagnosed with Chrons disease few years ago. There is no cure and it can be hell when it flares (Going for a number 2 10+ times a day, extreme weight loss, fatigue etc). Not a lot of fun.

Been through the following path so far:

Denial - Following diagnosis refused medical attention, until it got too much to live with. This was for about a year.

Why me? Spent a couple of years feeling quite sorry for myself. Still got on with work fine, gym okay - but I did really struggle to come to terms with it. The thought that in 50 years I'll still have the same problems was really hard to accept. I was a cxnt to family and people around me for some of this (Its no excuse!). I was struggling to get into remission and had to take Immodium to get through work meetings etc.

Last couple years have been a lot better. I've found medication that is working better for me (It took a lot of trial and error) and am much more positive. I look at it and think things could be worse, and when I'm in remission (Which I've been for a while now) life is as normal/good as anyone else.

I have no doubt there'll be periods in the future where this challenges me emotionally and plays with my head again. But for now I am much happier than before.

The treatments have side effects which can be a pain, and I do often find myself wondering why I have this (When every bugger around me is fine). It is not as debilitating as something like loss of a limb - but it can be really difficult in everyday life. For example I wouldn't go out with friends purely because I'd worry about needing the toilet, and have shat myself on several occasions - the mental battle is tough.

My advice would be talk to those around you and really try and work with doctors. If you act like an idiot with them (Not taking meds, missing appointments etc) then you're just making things worse.

Everyone has their own problems - the problem with a health condition is that you go thorough all the sh1t everyone else has, then have this on top. Treatments are improving and it is getting better - one great change has been the disabled toilets - I've had to use them in the past, and the looks people gave me when doing so were disgraceful. Probably need it more than someone in a wheelchair!

Awareness is important for thoose around you, sadly most of my friends don't really get it (Even when it's put me in hospital a few times), but the world is a very naive place.
#4
PartyBoy
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Re: Anyone here with any life changing health conditions? 2018/05/11 06:43:29 (permalink)
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Sounds a real pain in the ass mate (pun intended!), at least until you taken back control of your condition.
There's sh1t loads wrong with me but I've found taking control oneself of the issues is half the battle. Also speaking with someone who's in the same boat can be highly worthwhile for information purposes if nothing else. For example, how else would someone newly diagnosed with crohn's know about stuff like https://www.ofwat.gov.uk/...r-assistance/watersure

#5
sl
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Re: Anyone here with any life changing health conditions? 2018/05/11 13:00:08 (permalink)
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VikingPump
Assume you're being serious so will answer lol.

Diagnosed with Chrons disease few years ago. There is no cure and it can be hell when it flares (Going for a number 2 10+ times a day, extreme weight loss, fatigue etc). Not a lot of fun.

Been through the following path so far:

Denial - Following diagnosis refused medical attention, until it got too much to live with. This was for about a year.

Why me? Spent a couple of years feeling quite sorry for myself. Still got on with work fine, gym okay - but I did really struggle to come to terms with it. The thought that in 50 years I'll still have the same problems was really hard to accept. I was a cxnt to family and people around me for some of this (Its no excuse!). I was struggling to get into remission and had to take Immodium to get through work meetings etc.

Last couple years have been a lot better. I've found medication that is working better for me (It took a lot of trial and error) and am much more positive. I look at it and think things could be worse, and when I'm in remission (Which I've been for a while now) life is as normal/good as anyone else.

I have no doubt there'll be periods in the future where this challenges me emotionally and plays with my head again. But for now I am much happier than before.

The treatments have side effects which can be a pain, and I do often find myself wondering why I have this (When every bugger around me is fine). It is not as debilitating as something like loss of a limb - but it can be really difficult in everyday life. For example I wouldn't go out with friends purely because I'd worry about needing the toilet, and have shat myself on several occasions - the mental battle is tough.

My advice would be talk to those around you and really try and work with doctors. If you act like an idiot with them (Not taking meds, missing appointments etc) then you're just making things worse.

Everyone has their own problems - the problem with a health condition is that you go thorough all the sh1t everyone else has, then have this on top. Treatments are improving and it is getting better - one great change has been the disabled toilets - I've had to use them in the past, and the looks people gave me when doing so were disgraceful. Probably need it more than someone in a wheelchair!

Awareness is important for thoose around you, sadly most of my friends don't really get it (Even when it's put me in hospital a few times), but the world is a very naive place.


Mate that sounds awful. I'm glad your coping alot better now, and it seems you need a new set of friends.

I was only wondering because my grandfather passed away few years ago, he had diabetes which caused complications later in his life. His arthritis got pretty bad and he also ended up on dialysis in his final year . He was 78 when he passed away.

My dad also has diabetes and has had it since he was 50 odd. I think I need to start making some lifestyle changes especially in terms of diet and health.
#6
dirtyvest
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Re: Anyone here with any life changing health conditions? 2018/05/11 13:08:18 (permalink)
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Not myself but my wife is hoping to get a diagnosis for why she's spent most of her life in permanent pain... not getting very far, arthritis has been dismissed, fibromyalgia has been dismissed, osteoperosis has been dismissed, nerve damage has been dismissed. She's had various ailments all her life and the symptoms are always quite severe. Having one of those nuclear medicine bone scan things next week. She can't walk properly, keeps having falls, pains in all her joints and muscles added to this her monthly cycles last 24/28 days a month on to of which she has also has depression and anxiety issues yet somehow still works every day in childcare.
 
The biggest annoyance (aside from the daily pain) is the lack of diagnosis and prognosis as you have to light at the end of the tunnel

Limits, like fear, are often just an illusion: MJ 12/9/09
My journal
#7
Quaterback
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Re: Anyone here with any life changing health conditions? 2018/05/12 01:32:02 (permalink)
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I suffer from megalophallus where entrapped blood blocks oxygen to my penis leading to extreme penis hypertrophy. I also have priapism meaning that I have unwanted erections for hours. I've dealt with it since my teens but it doesn't get any easier to manage. 
#8
SeanR
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Re: Anyone here with any life changing health conditions? 2018/05/12 02:10:11 (permalink)
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double post
post edited by SeanR - 2018/05/12 08:42:33
#9
SeanR
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Re: Anyone here with any life changing health conditions? 2018/05/12 02:10:11 (permalink)
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Edit,
post edited by SeanR - 2018/05/12 08:44:44
#10
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