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Dietician recommendations? diet help for sister with Cerebal Palsey.

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south_west_male
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2011/03/28 15:26:52 (permalink)
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Dietician recommendations? diet help for sister with Cerebal Palsey.

Hi Guys, I will try and keep this short.
My Sister is 17 and has cerebal palsey. She has no real movement of her legs and pretty much spends all her day in a wheel chair. Mentally she is good and has good speech so disability is mainly physical. She does physio daily and swims twice a week but that is it as far as activity goes. In the last few years she has put on quite a bit of weight. My family eat what would be considered a fairly healthy diet as far as 'general' thinking goes - breakfast, lunch, dinner - all fresh food, cooked from raw ingredients, not much processed food or treats.
However as she is very sedentry I don't feel this is the best diet for her. She is probably 1-2stone over weight which she is not very happy about but also we have to lift her from her chair to the toilet/bed/sofa/car etc and if this weight gain continues we won't be able to manage.
I've told my mum that I think her eating habits are wrong and she has asked me to tell her what she should be eating. I do often advise friends and family on the basics but told her that she really needs to see a professional. She is quite happy to do this as she will do anything to help her daughter. Also my mum has been diagnosed osteopenia (sp?) basically early stages of osteoperosis and would like help with her diet as well.
I know there are some dieticians on here who offer phone consultations but my mum would feel more comfortable meeting someone and talking through it properly and getting a proper plan together.
Does anyone have any suggestions or recommendations for dieticians in the south-west area (Somerset)? Willing to travel further but obviously better if we can get one close.
 
Many thanks for taking time to read this fairly long post. 
#1

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    swordfish
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/28 17:32:55 (permalink)
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    just a quick point about your mum - try to cut out milk, eat plenty of veg and a vitamin D3 suppliment at 5000iu per day and her bones will be strong in no time.
     
     
    #2
    south_west_male
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/28 18:03:10 (permalink)
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    Thanks for the reply swordfish. Without wanting to take the post to off topic can you explain to me why milk should be avoided? Cheers
    #3
    swordfish
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/28 18:19:39 (permalink)
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    "basicaly" dairy proteins and animal proteins make blood acidic, to balance this out the body "leaches" calcium out of the bones to neutralise it. so even though people asume Milk has calcium - must be good for your bones! its quite the oposite.
    the best way to get around this is to cut down on dairy, and make sure with every meat you eat you have enough veg that are alkaline so the body doesnt have to leach calcium out of your bones.
    just ask if you got anymore questions - would help your sis but im further up north
    #4
    Big Les
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/28 19:28:42 (permalink)
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    this is really not the place for suggestions.
     
    To be really helpful (if it were me) you need a diet history which is accurate and detailed; it is also important that you as a family are accessing all the available help and again thats best done through specialists - first port of call is usually your GP or if you have one a care co-ordinator or equivalent.
     
    Suggestions for change also need to be built with those who implement the changes to make sure they are practical - it is important to bear in mind that the provision of food is an expression of love for someone, and that when you start tinkering with it you are dealing with a complex emotional environment - an internet forum really doesnt facilitate the sort of conversations you have in this sort of situation
    #5
    swordfish
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/28 21:38:02 (permalink)
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    which is why hes asking to meet some one les
    #6
    Big Les
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/28 23:08:24 (permalink)
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    Swordfish: i made point about the appropriate way to get a referral via the NHS.
     
    Any dietitian referral within the NHS has to come through an approved channel - not just ring up and ask, unless there is a dept taking self referrals out there I dont know about?
     
    A private dietitian, for a complex condition, poses a complex picture because you need someone with experience to work with this condition, preferably dietetic intervention is part of a multidisciplinary approach that aims to maximise quality of life for all involved and provides the necessary support services to everyone involved - which outside the auspices of the NHS would be very very costly, or impossible - depending where you end up. That is without the practical hurdles of notes and test results :)
    #7
    south_west_male
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/28 23:20:17 (permalink)
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    Thanks for the replies. Forget my mum and her condition - she is going through her gp. It's mainly advice for my sister I'm after in relation to who the best person would be to see. Advice if anyone knew a good contact in south west As swordfish pointed out im not asking for advice on here - asking for advice on best people to see Price is not a huge stumbling factor.
    Thanks for both inputs
    #8
    Pasty
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/29 20:38:47 (permalink)
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    I would agree with Les here South_West_Male. Unfortunately I'm based in the Northern Cluster of hospitals and therefore don't know any Dietitians from the South off the top of my head, perhaps James could be of more help?
     
    I'd visit your GP though and get a dietetic referral through them, going private won't necessarily = better care, we're all trained in the same fashion and have the same credentials. 
    #9
    Big Les
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/29 20:45:49 (permalink)
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    Its more south than the people I know too, and they are all NHS so would need referrals anyway,
    I have asked to see if anyone knows - awaiting replies but not holding my breath really
    #10
    south_west_male
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/29 21:50:41 (permalink)
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    Thank you very much for your replies. Really appreciate you asking around. Just slightly dubious if the docs will refer as she's not obese or anything - just a little overweight. Just looking for the best kind of diet for enforced sedentary I guess. Maybe I don't need to investigate a fully qualified dietician. Maybe a local nutritionist? My limited understanding is that dieticians have to have done something like 5-7 years and be registered. Therefore have more confidence in them as not sure of legalities for 'nutritionists'.
    #11
    James
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/30 22:14:58 (permalink)
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    Here's the official register for freelance dietitians: http://www.dietitiansunlimited.co.uk/
    You can find someone in your area who specialises in certain conditions
    #12
    south_west_male
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    Re:Dietician recommendations? diet help for sister with Cerebal Palsey. 2011/03/31 14:24:48 (permalink)
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    Great James just what I was looking for. Thanks very much and all others who contributed to the post
    #13
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