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one for james

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ginasmg
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2006/07/10 01:39:00 (permalink)

one for james

do you know if there is a link between a disability such as cerebal palsy and the bodys metabolism?
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    James
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    RE: one for james 2006/07/10 11:47:11 (permalink)
    Metabolism is a broad term can you be more specific in referance to cerebral palsy

    There are lots of disabilities with links to metabolism, so do you want the reply limited to cerebral palsy or do you want 2-3 out of 100s of other examples?

    James Collier - MuscleTalk Co-Owner
    @JamesCollierMT


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    ginasmg
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    RE: one for james 2006/07/10 11:58:17 (permalink)
    specificaly cerebal palsy.as my daughter has this condition.is only 9 yrs old and weighs 9 stone.we give her a good diet ie fruit and veg etc.she definatly does not eat too much but still is over weight.she has limited capability to exersise.and has medication to regulate her bladder function.i wondered if there is anymore i can do to reduce her weight.i would be very gratefull for any advise at all as im at my wits end what to do.thanks for your reply
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    drab4
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    RE: one for james 2006/07/10 12:29:56 (permalink)
    What is the name of her medication mate?
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    ginasmg
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    RE: one for james 2006/07/10 12:38:15 (permalink)
    nitrofurantoin she takes 1 a day and has been on this since about 7 yrs ago.i am trying all avenues as we do give her a very balanced diet.she is also a vegetarian for the past 4 months.would appreciate any advise.the more informed i am the more i can understand thanks for your reply mate
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    James
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    RE: one for james 2006/07/10 14:05:10 (permalink)
    I am by no means an expert here - the only contact I have had is second hand helping out when the relevant dietitian wasn't there in my NHS days. The contact I ahve had was more with patients who were tube fed rather than those eating.

    Sometimes CP patients can be carnitine deficient as an abnormality. You may know that carnitine is involved in the breakdown of fat which could be linked to her weight loss problems. However I am not recommending carnitine supplementation, but it may be worth mentioning this to her doctor/health visitor - they may well have already investigated this.

    If she does very little exericse then the problem could simply be linked to her requiring a low calorie (but nutritionally adequate) food intake.

    Do you have a paediatric dietitian involved? If not go to your paediatrician or GP and ask for a referral to one - they will be alot more knowledgable than I on this

    James Collier - MuscleTalk Co-Owner
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    ginasmg
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    RE: one for james 2006/07/10 14:31:05 (permalink)
    thanks for your input.i realise that you are just generaly giving me information and nothing you say will be implmented by me unless i discuss it with her doctor first.i appreciate very much any information i can gather as there may be something her doctors and specialists unintentionaly miss.it is better to have questions to ask and have a certain amount of subject matter to discuss even if it appears irrelivant.i feel the more angles you come from the more likley we will find a solution.my daughter has seen a dietition and has followed it to a t.but the weight is still there.she is not in a wheel chair and can walk quite well but awkward and falls regulary.however we do try to get as much exersise as we can for her.i forgot to say she has fluid retention and bloats easily wheather or not this is significant to her weight or diet i will have to find out.you have been most helpfull and i thank you again if there is anything else you think of that is worth discussion please contact me thanks once again take care
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    James
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    RE: one for james 2006/07/10 14:33:53 (permalink)
    Does she have a phsyiotherapist giving input? if so they would be best to contact re exercise
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    ginasmg
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    RE: one for james 2006/07/10 14:35:34 (permalink)
    sory mate she also takes druisitol twise a day,i think we may be on the same lines as i feel that there may be some sideeffects of her medication that could cause the weight problem.though the doctors have said not i just dont know interesting subject though.thanks again
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    ginasmg
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    RE: one for james 2006/07/10 14:37:14 (permalink)
    yes she does have physio therapists going into her school twice a week that are very good and advise us on what to do
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